California Hepatitis Alliance * Center for Health Improvement 1330 21 Street, Suite 100 Sacramento, California 95811 Phone: 916-930-9200 Internet address: www.calhep.org The California Hepatitis Alliance (CalHEP) seeks to reduce the scope and consequences of the hepatitis B and C epidemics, which disproportionately affect California’s ethnic communities and the socioeconomically underserved. Committed to culturally competent public education and awareness, CalHep focuses on sound public health policy and advocacy to improve California’s public health approach to liver wellness.
Caring Ambassadors Program * PO Box 1748 Oregon City, OR 97045 Phone: 503-632-9032 Internet address: www.HepCChallenge.org The Caring Ambassadors Hepatitis C Program is a national nonprofit organization devoted exclusively to meeting the needs of the hepatitis C community. The mission is to improve the lives of people living with hepatitis C through information and awareness.
HCV Support * P.O. Box 1077 South Dennis, MA 02660 Internet address: www.hcvsupport.org HCV Support offers an informational forum and chat room for persons with Hepatitis C. They provide a place to post questions and share personal experiences regarding hepatitis C.
HepC Alliance 601 Bus Loop 70 W., Suite 138 Columbia, Mo 65203 Phone: 866-434-1975 573-442-6599 Internet address: www.hepcalliance.org The MO Hepatitis C Alliance mission is to provide education, testing, and follow-up care to all people affected by HCV in rural and Mid Missouri. They work to increase awareness of HCV to the general public, healthcare providers, and the corporate community.
H.E.A.L.S of the South * PO Box 180813 Tallahassee, FL 32318 Phone: 850-443-8029 Internet address: www.HEALSoftheSouth.org The goal at HEALS is to expand awareness about liver health through educational programs, literature, and public speaking. Young people, veterans, minorities, and prison populations are some of the groups targeted by HEALS. By educating the public, they hope to aid in the prevention of hepatitis in all its forms. Help & Education for Liver Patients
(HELP!) P.O. Box 2028 Santa Cruz, CA 95063-2028 Phone: 831-462-2979 Internet address: www.help4hcv.org HELP! is a 501c3 non–profit organization dedicated to hepatitis C and organ donor awareness; support services for liver patients and their families; and integrated liver–&–life counseling for recovering addicts. Since 1998, HELP! has provided compassionate support, education, resource referral, and advocacy at all stages of liver disease, from newly-diagnosed to pre– & post–transplant to end-of-life.
Hepatitis B Foundation 3805 Old Easton Road Doylestown, PA 18902 Phone: (215) 489-4900 Fax: (215) 489-4920 Internet address: www.hepb.org The Hepatitis B Foundation is a national non–profit organization dedicated to finding a cure and improving the quality of life for those affected by hepatitis B worldwide. Their commitment includes funding focused research for HBV and HCV, promoting disease awareness, supporting immunization and treatment initiatives and serving as the primary source of information for patients and their families, the medical and scientific community and the general public.
Hep C Connection * 1325 S. Colorado Boulevard, B-302 Denver, CO 80222 Phone: 303-860-0800 or 800-522-4372 Fax: 303-860-7481 Internet address: www.hepc-connection.org Hep C Connection provides a hepatitis C network and support system to assist hepatitis C–challenged individuals and their families.
Hepatitis C Association * 1351 Cooper Road Scotch Plains, NJ 07076 Phone: 866-437-4377 Fax: 908-561-4575 Internet address: www.hepcassoc.org The Hepatitis C Association focuses on educating the public, creating awareness, promoting organ donation, and offering support to hepatitis patients. They do this through publications, an Internet site, a 24-hour toll–free support line, awareness pins, and educational programs.
The Hepatitis C Mentor & Support Group, Inc. Email: HepatitisCMSG@gmail.com Phone: 917-612-2731 Internet address: http://www.hepatitiscmsg.org/ We formed the Hepatitis C Mentor and Support Group to address a lack of supportive services for people living with Hepatitis C. Support groups and patient mentoring services have been shown to be important elements of successful and cost effective medical care for patients with Hepatitis C and other chronic health conditions. These services improve the quality of life, as well as medical results, for individual patients. Support groups and patient mentoring services are more important than ever as we enter a new and promising era of treatment for Hepatitis C.
Hepatitis C Support Project * P.O. Box 427037 San Francisco, CA 94142-7037 Phone: 415-587-8908 Internet address: www.hcvadvocate.org The Hepatitis Support Project offers support to those who are affected by the hepatitis C virus (HCV). Support is provided through information and education, and access to support groups. The Project seeks to serve the HCV community and the general public.
Hepatitis Education Project * The Maritime Building 911 Western Ave #302 Seattle WA 98104 Phone: 206-732-0311 Internet address: www.hepeducation.org The Hepatitis Education Project works to raise awareness about the facts concerning hepatitis patients and the resources available to help those who live with the disease.
Hepatitis Foundation International 504 Blick Drive Silver Spring, MD 20904-2901 Phone: 301-622 4200 Internet address: www.hepfi.org Hepatitis Foundation International works to increase awareness of the worldwide problem of viral hepatitis, and to educate the public and health care providers about its prevention, diagnosis, and treatment.
Hepatitis C Network of Hawaii The Hepatitis Support Network of Hawaii is the oldest hepatitis prevention, education, treatment and support organization in the Hawaiian Islands. Our primary mission is to help save lives affected by hepatitis B and C as well as infectious diseases. Internet Address: http://Hepatitissupportnetwork.org
Hepatitis Prevention, Education, Treatment and Support Network of Hawaii (HEPTS) * 3254 Olu Street Honolulu, HI 96816 Phone: 808-221-6204 Fax: 808-758-5797 E-mail: KenAkinaka@aol.com HEPTS is the only hepatitis B and C advocacy organization in Hawaii. It offers educational presentations and training opportunities for people with hepatitis and health care professionals.
National Alliance of State and Territorial AIDS Directors (NASTAD) 444 North Capitol Street, NW, Suite 339 Washington D.C. 20001 Phone: 202-434-8090 Internet address: www.nastad.org NASTAD strengthens state and territory-based leadership, expertise, and advocacy and brings them to bear in reducing the incidence of HIV infection and on providing care and support to all who live with HIV/AIDS. NASTAD’s vision is a world free of HIV/AIDS.
National Viral Hepatitis Roundtable Internet address: www.nvhr.org The National Viral Hepatitis Roundtable is a coalition of public, private, and voluntary organizations dedicated to reducing the incidence of infection, morbidity, and mortality from viral hepatitis in the United States through strategic planning, leadership, coordination, advocacy, and research.
St. Luke’s Texas Liver Coalition 6620 Main St., Suite 1505 Houston, TX 77030 Ph: 832-355-5119 / 800-72-LIVER Fax: 832-355-5550 Web: www.texasliver.org The Texas Liver Coalition started in 1995 as a Hepatitis C Support Group, in 2002 we were incorporated into the St. Luke’s Episcopal Hospital and became the St. Luke’s Texas Liver Coalition. They offer educational trainings, free HCV & HBV testing throughout Texas and the confirmatory test, have a toll free LIver Line for people to call and ask questions. They are also available through email. TLC continues to run 20+ Support Groups, provide twice a month Hepatitis C Treatment Training Classes (teach patients that are getting ready to go through treatment), and designed an informational/educational CD called Hep C D with various links, presentations, etc. that is given to interested clients, and I try to find resources for people that need help. San Louis Obispo Co.
Hepatitis C Project * P.O. Box 15130 San Luis Obispo, Ca 93406 Phone: 805-543-4372 Internet address: www.slohepc.org The San Luis Obispo County Hepatitis C Task Force is dedicated to educational outreach, public awareness, and the on-going study of community needs regarding the impact of Hepatitis C in San Luis Obispo county.
Treatment Action Group 611 Broadway, Ste. 308 New York, NY 10012-2608 Phone: 212-253-7922 Internet address: http://www.treatmentactiongroup.org/ The Treatment Action Group’s Hepatitis/HIV Project collaborates with activists, community members, scientists, government, and drug companies to make life-saving information, prevention, and safer, more tolerable, and more effective treatment for viral hepatitis and HIV available to all people who need it. It forges coalitions with activists worldwide to demand universal access to prevention, care and treatment for viral hepatitis and HIV.
Veterans Aimed Toward Awareness (VATA) * 111 West Main St. Middletown, DE 19709 Phone: 302-378-1415 Internet address: http://www.charityblossom.org/nonprofit/veterans-aimed-towards-awareness-inc-townsend-de-19734-terrance-l-baker-510388432 VATA is a member-run organization of veterans. Their outreach and advocacy is by and for the men and women who served in the nation’s military services and their families. VATA seeks political and social change within the veteran’s health system, the community, our state, and our country. Women of a Certain Age . . . http://www.jackigethner.com/woaca.html Women of a Certain Age… provides local resources for women over fifty for information and support regarding HIV/AIDS, sexual health and Hepatitis C prevention education. WOACA disseminates this information through peer educators in community settings including churches, garden groups, workplace sites and other venues. WOACA was founded by Jacki Gethner (LMT, Certified Drug & Alcohol Counselor and a resident of Portland, Oregon. Jacki is a renowned international health advocate, activist and educator.
HEPmag.com and HEP magazine
212 West 35th Street, 8th Floor New York, New York 10001-2508
Internet address: www.HEPmag.com
HEP magazine and HEPmag.com are the go-to sources for educational and social support for people living with hepatitis. Launched in 2010, the website is devoted to combating the stigma and isolation surrounding hepatitis, and offers news, in-depth reporting, educational tools, care resources, and peer-to-peer networking.
American Liver Foundation * 75 Maiden Lane, Suite 603 New York, NY 10038-4810 Phone: 212-668-1000 or 800-676-9340 Fax: 212-483-8179 Internet address: www.liverfoundation.org The American Liver Foundation is a national, voluntary, nonprofit health agency dedicated to preventing, treating, and curing hepatitis and all liver diseases.